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It’s CRPS Awareness Month! CRPS awareness month 2021 has finally started! Throughout November we will be sharing facts and information about CRPS across our social media channels, we also have our 7th annual national CRPS Conference on 21 November and don’t forget our Silent Auction in aid of Burning Nights CRPS Support. What’s Going On in November? Beril, are you a Formula 1 Racing fan?Fancy owning a framed signed cap by F1 2021 McLaren Team drivers Lando Norris and Daniel Ricciardo? Now’s your chance! The signed cap has been expertly framed together with the images of both the drivers that were sent to us by McLaren Racing. Between 1st to 20th November Burning Nights CRPS Support is holding an online silent charity auction where you can bid for this amazing prize. There is a reserve of £300. All you have to do is to email your bid and your full contact details to fundraise@burningnightscrps.org We will announce the highest bidder during our conference, it will be posted online, on our website & the winner will be contacted direct. So what are you waiting for? Get bidding!Make A bid 7th Annual National CRPS ConferenceBeril, only a couple of weeks to go before our 7th annual CRPS conference on Sunday 21 November! Our full 1 day annual CRPS conference will be a physical event & will be at DoubleTree Hilton Chester, United Kingdom. This is a FREE event and as usual we will have some fantastic speakers all who have working knowledge of Complex Regional Pain Syndrome. Our annual conference is for CRPS patients, their families & caregivers as well as healthcare professionals & students and lawyers who have an interest in CRPS. There’ll be breaks throughout the day when you can chat with others attending the conference. Lunch & refreshments are provided free of charge during the conference. Register now for your free ticket! There’s also a chance on the day to purchase any of our CRPS products including Christmas cards as well! For those unable to attend the conference in person we are going to live streaming it on Zoom. If you are interested in the live stream option, please email us at support@burningnightscrps.org with your full contact details including full name, email and country you live in.Sign up for your FREE ticket Our 2021 CRPS Conference SpeakersMr Philip Cutts an Orthopaedic and Musculoskeletal Rehabilitation and Pain Management Specialist from Philip Cutts MSK talking about ‘Physiotherapy for CRPS’ Chris Edwards from Lewis Reed holding a Q & A on ‘Driving with a Disability’Mr Mohammed Akbar Hussain, Consultant Neurosurgeon talking on ‘Neuromodulation as a treatment option for CRPS’ Miriam Parkinson an Advanced Occupational Therapist is going to presenting on ‘Managing Your CRPS Flare-Ups’ Pankaj Madan – a Barrister who regularly deals with CRPS claims from Exchange Chambers talking about the Barrister’s Role in CRPS Legal ClaimsPCCA Ltd who are going to give us a very interesting talk on ‘An Introduction Personalised Medicines including for CRPS’ Ashleigh Stevens – a CRPS patient – sharing her lived experience of CRPS Register for your ticket Check Out Some Of Our Blog ArticlesHow To Get A Better Sleep With CRPS & Chronic Pain Sleep can be extremely difficult when you live with CRPS or chronic pain. Check out our top tips for getting a better night’s sleep Learn More ›18 Tips Preparing For Your Pain Appointment Attending a pain management appointment can be a daunting experience. Our 18 tips are to help you prepare for your appointment. Find Out More › Our Upcoming EventsCRPS Awareness Month CRPS Awareness Month lasts the whole of November – if you’re interested in fundraising for Burning Nights CRPS Support please contact us & don’t forget to donate your money! Find Out ›Online CRPS Support Group Join us for our monthly online CRPS Support group for CRPS patients on Wednesday 10 November at 2pm GMT. You’re not alone in this journey. Sign Up ›Young Person’s Support Group Under 18 & have CRPS? Join our online Young Person’s support group on 18 November at 4.30pm GMT Register Today ›Loved Ones & Caregivers Support Group Are you a partner, parent or caregiver of a CRPS patient? Join our online support group on 16 November at 7pm GMT. Sign Up Today › Our Online ShopWinter Woodland Christmas Cards This pack of 10 Christmas cards features a beautiful Winter Woodland scene will be loved by many but especially perfect for your nature loving friends & family Buy Yours Now ›Festive Red Bus Christmas Cards This lovely pack of 10 cards with envelopes features a beautifully illustrated festive big red London Bus with the number 25 on the front as well as the charity name Get Your Pack Today ›Zipped Hoodie Help spread awareness of CRPS with our Zipped Hoodie! The inside of the zipped hoodie is soft, making it a comfortable wear. Sizes Small to XXL. Colour Black with orange zip & toggles. Buy Yours Now ›CRPS Awareness Face Mask Our reusable face masks a soft double layered polyester material and have black elastic straps for around the ears. Take a Look › FundraisingCRPS Awareness Charity Fundraiser Maria Ayala from USA has set up a fundraiser for CRPS awareness and Burning Nights CRPS Support to run during November. November is the perfect time not only to fundraise but to also raise awareness of Complex Regional Pain Syndrome. Help us to help all those in need of our support. Make A Donation ›Corben Takes on Rock n Roll Liverpool Marathon Corben Roberts made the decision to raise money for the UK’s best known CRPS charity & took on the Liverpool marathon (all 26 miles!). His wife Amy, has lived with CRPS since 2019 & is the primary reason for his fundraising efforts for the charity. Learn more about Corben or donate below Donate Today › Thank You To Our Recent FundraisersOn behalf of all the people we support, we say a huge THANK YOU to our recent fundraisers! Most of the fundraisers below are still open to receive donations, please do consider donating if you can, as every penny and pound raised is important. Fundraisers including:Daisy Roberts – who took on Lands End to John O’Groats cycle after learning to ride in just 1 month! Daisy raised just under £3,000 including matched funding from Abbott MedicalBen Ashworth – who bravely completed the Virtual London Marathon in October. Ben so far has raised £1,106.Corben Roberts – as mentioned earlier, Corben completed the Rock n Roll Liverpool Marathon & has raised £1,100 so farDan Ward – completed the gruelling Three Peaks challenge on crutches after having an accident in 2019 and developing CRPS. So far Dan has smashed his target and raised £2,660. Will you help him to reach £3,000?Lisa Jennings – completed a Triathlon after taking the summer to learn to swim with her knee injury. Lisa has so far raised £1,364.Elizabeth Marshall – has a number of ongoing events over several months. Please do donate if you can.Mark McKee (aka Sodden Gecko) – has been gaming live throughout 2021 and has raised £371 so far. We’re sure Mark has more gaming nights to go before the end of the year! Interested in Fundraising for Burning Nights CRPS?There are many ways you can fundraise for Burning Nights CRPS Support. Not sure why you should? Here’s what Corben had to say: ”I don’t think it matters how much you raise. I feel more committed, and that I need to share our story and tell people what is happening. For me and Amy, the awareness is really important.” Find out more about fundraising for Burning Nights CRPS Support by clicking the button below.Get InvolvedFunds from Home Collection BoxesBeril, have you ordered one of our home collection boxes? If so don’t forget to donate your saved funds when your box is full! CRPS awareness month is the perfect time to donate that loose change you’ve been saving in the collection box! There are a number of ways you can donate your saved change including:By bank transfer direct to our charity’s bank accountUsing our one-off donation form on our websiteBy PayPalBy cheque and post it to usSee the ways you can donate that saved up loose change on our website by clicking the button below, or contact us for our banking information. We will soon be in touch with all those who have ordered our boxes. Don’t forget that if you are a U.K. tax payer you can also include Gift Aid if you’re eligible, as we can claim an extra 25% on top of your donation through the UK Government.Ways to Donate Your ChangeWe Support Anyone Affected By CRPSWithout the support of people like you Beril, Burning Nights CRPS Support couldn’t continue offering the services we do.Every week approximately 288 people in the UK are diagnosed with Complex Regional Pain Syndrome. We want to give people with CRPS and their families and loved ones the knowledge they need to understand their condition and to offer a range of support services such as monthly online support groups, befriending scheme, counselling service and live chat, to name just a few. If you find our information or our services useful, please consider making a small donation today or fundraising for us.Donate NowPS. Don’t forget to get your conference ticket today!Register Today |
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